Friday, March 2, 2012

Day Thirty-Seven:

Drum roll, please... the verdict is in. NEGATIVE.  I do not have the DQ2 or DQ8 gene. Shocked? No. Confused? Yes. Happy? Well, I think so. Sounds weird, I know. Who wouldn't be happy, right? I just got saved from a horrible disease that would affect the rest of my life. Of course I'm happy about all of the obvious. But now what? Is it something worse? Or just something different? The big question is the WHAT... we are back to square one. Why do I have positive antibodies? Now I'm being referred to a new specialist, a G.I. who deals with bacterial overgrowth. Possibly something there? I am frustrated that another month has gone by, and we seem to be no closer to an answer. Interestingly enough, I read that 97% of Celiac patients have one of the two genes I DON'T have. Could I be in the other 3 percent? I guess we'll find out soon enough, as I now begin the process of reintroducing gluten into my diet. This will enable me to manage my symptoms (will the severe fatigue set back in?).  My joint pain hasn't changed much, and my headaches, well, although I've lowered the dose of meds., I haven't seen too much improvement there either. Where do I go from here... and why do I feel like my name is getting closer and closer to the pages of a medical journal????? Shouldn't I be celebrating? I am staring at a loaf of bread and thinking, "what's next?"

Thursday, March 1, 2012

Day Thirty-Six: Still waiting. I haven't posted lately because my computer died and I'm waiting for a new battery and power cord. Regardless, there is not much to report because it's been two weeks since the genetic test and I still have no answers! I am feeling good... Definitely better, but not great. When can I expect to feel great? Ever? Is this even the right diagnosis? Am I raising the bar too high hoping to feel fantastic? Such a drastic life change warrants an expectation of a drastic change in how I am feeling, right? So many questions... I just need my results so I know this path is the right one...